With Coverage Through Obamacare, Transgender Woman Opts For Surgery

This post has been updated to reflect the subject鈥檚 2015 insurance coverage. Click here to read.

Devin Payne had gone years without health insurance 鈥 having little need and not听much money to pay for it.

Then Payne, who had a wife and four children, realized she could no longer live as a man.

In her early 40s, she changed her name, began wearing long skirts and grew out her sandy blond hair. And she started taking female hormones, which caused her breasts to develop and the muscle mass on her 6-foot one-inch frame to shrink.

The next step was gender reassignment surgery. For that, Payne, who is now 44,said she needed health coverage. 鈥淚t is not a simple, easy, magical surgery,鈥 said Payne, a photographer who lives in Palm Springs. 鈥淭rying to do this without insurance is a big risk. Things can go wrong 鈥 not having the money to pay for it would be awful.鈥

Payne learned in the fall that she might qualify for subsidies through the state鈥檚 new insurance marketplace, Covered California, because her income fell under the limit of $46,000 a year. She eagerly signed up in March for a Blue Shield plan for about $230 a month, and began making preparations for the surgery that would change her life.

A 鈥楶re-existing Condition鈥

Among the less-talked-about implications of the Affordable Care Act is the relief it is providing to many transgender people, many of whom are low-income and who have struggled to obtain health coverage.

Getting jobs that offer insurance often has been difficult for transgender people 听and the cost of purchasing plans on the private market can be prohibitive. Some have been 听denied policies altogether after being diagnosed with 鈥済ender identity disorder,鈥 often considered a pre-existing condition.

Devin Payne, 43, sits in the backyard of her Palm Springs home. She says she feels comfortable looking in the mirror after her sex-reassignment surgery (Photo by Heidi de Marco/KHN).

Without insurance, many people were unable to afford the hormones, surgeries and counseling needed to complete their transition. Nor would they have been covered in the event of surgical complications, which can include infections.

鈥淲e are still dependent on insurance and the medical community for us to be able to live authentically,鈥 said Aydin Kennedy, coordinator of the transgender health program at St. John鈥檚 Well Child and Family Center in Los Angeles.

Now, federal law prohibits health insurance companies from discriminating against transgender people, and it bars insurers from denying coverage based on pre-existing conditions. That makes it possible for more transgender people to purchase private plans. And in states that expanded their Medicaid programs, those with low incomes may get free coverage.

The federal anti-discrimination regulations have yet to be written, but California insurance regulators have said that companies must treat transgender patients the same as other patients. For example, if plans cover hormones for post-menopausal women, they must also cover them for transgender women.听Medicare, the program for the elderly and disabled, lifted its ban on covering sex reassignment surgery earlier this year.

鈥淭he law and policy are on a transgender person鈥檚 side for the first time,鈥 said Anand Kalra, program administrator at the Oakland-based Transgender Law Center.

Conservative and religious groups oppose using government funds for transgender surgeries, questioning whether they are medically necessary, ethical or effective.

鈥淲e would oppose sex change operations all together,鈥 said Peter Sprigg, senior fellow at the Family Research Council in Washington, D.C. 鈥淏ut as a public policy issue, we would feel particularly strongly that taxpayers shouldn鈥檛 be asked to pay for it.鈥

A few obstacles remain for transgender patients. Not many doctors specialize in transgender care. And while the law opens the door to insurance coverage, insurers can set conditions and don鈥檛 automatically approve payment.

鈥淚nsurance companies are making up their own rules as they go along,鈥 said Kalra of the Transgender Law Center.

鈥楩eeling Complete鈥

Growing up in Kansas, Payne remembers trying on her mother鈥檚 clothes and dressing as a girl every year for Halloween. She dreamt of having another life after this one, as a girl. But Payne said she mostly suppressed her feelings and tried to live up to the expectations for a male.

鈥淚 put it out of my head,鈥 she said.

She married a woman she met at work and they had four children, now ages 7 to 22. But she never felt comfortable in the traditional role of father and provider.

鈥淚 was just horrible at it because it wasn鈥檛 who I was,鈥 she said. So Payne became the primary caretaker, playing the 鈥渕ommy role鈥 as she worked from home doing software development for pharmaceutical companies.

She felt increasingly anxious, and in late 2012, a therapist helped her to realize that she was meant to live as a woman. Payne said her entire outlook on life changed when she started taking female hormones.

鈥淎ll my anxiety and all of the bad things that I felt inside were just completely washed away,鈥 she said.

Payne told her wife, who was upset. She told Payne: I married a man, not a woman — but she also admitted that she wasn鈥檛 entirely surprised. With mixed feelings, Payne鈥檚 wife stayed in the marriage, and the family moved from Kansas to California, in part so Payne could be more comfortable living as a transgender woman. They rented a small house in a middle class neighborhood on the outskirts of Palm Springs and sent their children to the public school.

Late last year, Payne鈥檚 wife, who had battled alcoholism for years, died of liver disease.

Payne said the children worried how people would react to her transition, but she said they soon realized it wasn鈥檛 as big of a deal as they had feared. When Payne brought birthday cupcakes to her 7-year-old daughter鈥檚 classroom last year, the children asked if she was a girl or a boy. After Payne told them she was a girl, 鈥渢hey just wanted their cupcakes.鈥

In California, Payne found transgender friends and became an advocate within the community. 鈥淵ou find out that there is a whole world of people out there,鈥 said Payne, who wears little makeup or jewelry and calls herself a 鈥淭-shirt and skirt kind of a girl.鈥

Payne was ready for the surgery. She started calling the approved providers in Blue Shield鈥檚 preferred provider network. 听But they were booked up for months, or years. She felt she couldn鈥檛 wait — she wanted to do the surgery while her children were on summer vacation so they could go to her parents鈥 house in Kansas as she recovered. She found an out-of-network doctor in Palo Alto who would do the surgery about a month later.

鈥淭he time was right and I wanted to get it done,鈥 she said.

Her Blue Shield policy said that gender reassignment surgery 鈥 which uses existing tissue to construct female genitalia — could be covered if patients met certain guidelines. For example, she had to be diagnosed with gender identity disorder and have an 鈥渆xpressed desire鈥 to live as a member of the opposite sex.

By the scheduled date, Blue Shield had authorized the operation but hadn鈥檛 determined exactly how much it would pay for an out-of-network provider. 听Payne got a cashier鈥檚 check for nearly all her savings, $27,000, to pay the doctor, hoping her insurance plan would reimburse most of it. She worried about all the other expenses too, including the hospital stay, lab work and anesthesiology services.

The day of the surgery at Sequoia Hospital in Redwood City, Payne said she remembers being wheeled in to the operating room and feeling very calm. When she woke up, with oxygen still attached and wearing her hospital gown, a friend told her that the surgery had gone well, without any immediate complications.

Later that day, she had just enough energy to type a few words on her Facebook profile: 鈥淔eeling complete.鈥

Grateful for Coverage

On a boiling afternoon in early July, about six weeks after the operation, Payne and her friends sat outside on the patio next to a pool. Misters sprayed above them, and Payne鈥檚 cat and two dogs wandered beneath their feet.

Payne said she did suffer a few complications later 鈥 some swelling and an infection — but she recovered with medication and support from friends.

She is still trying to figure out how much she has to pay out-of-pocket for the surgery and hospital stay — and how much of that her insurance plan will reimburse. Payne said she believes the lab work, pathology, anesthesiology services and follow-up doctor鈥檚 visits were all covered. But recently she got a statement saying she was on the hook for $17,000 of the total cost of the surgery.

Payne believes that the government and insurance companies should help cover such operations. 听The population of transgender patients who want surgery is small, and she said they are less likely to suffer mental health problems once they have it.

Payne said she听will be grateful for whatever coverage she can receive. Her friend Jenny Taylor, who is staying with her during the recovery, has had an even harder time with her insurance.

An outgoing transgender woman who laughs easily and wears colorful outfits and painted nails, Taylor purchased a policy through the insurance exchange in Tennessee. But she soon learned her doctor wasn鈥檛 in the plan鈥檚 network and that she had to pay cash for everything, with no hope of reimbursement.

鈥淢y insurance, even though I finally got it, was useless,鈥 she said.

The policy also wouldn鈥檛 pay for her hormones. A pharmacist told her the medication was for women 鈥 and her identification still listed her as a male. Taylor recently moved to Palm Springs and said she now plans to apply for insurance through Covered California.

鈥淚 was really frustrated,鈥 she said. 鈥淲e鈥檙e just trying to be ourselves, at the end of the day.鈥

Payne agreed, saying she finally feels like her body matches what she knows to be true 鈥 that she is a woman. 鈥淚t seems more natural,鈥 she said.

Updates

January 2015

About seven months after her gender reassignment surgery, Devin Payne said she is thankful she was able to have the operation and to have some of it covered by insurance.

In the end, Payne estimates that she paid about $18,000 鈥 about a third of the total cost. Her insurer, Blue Shield of California, picked up the rest.

鈥淭he insurance was for me a safety net,鈥 she said. She knew that if there were complications, she wouldn鈥檛 go bankrupt.

Payne said she is looking into whether she can get the insurance company to cover more of the expenses. She believes that fighting the insurance company could help other transgender men and women who want to have surgery in the future.

In December, Payne had some revisions made by her surgeon and said she is feeling better every day. Meanwhile, she is spending time with friends and working as a photographer. Her children, who were staying with her parents as she recovered, are back home with her in Palm Springs.

鈥淚 have a house full of kids again,鈥 she said. 鈥淓verything is kind of back to normal.鈥

July 2015

More than a year after her gender reassignment surgery, Devin Payne said she is in good health and has settled into her new body.

鈥淢y life makes more sense this way,鈥 she said. 鈥淏efore, I felt awkward and out of place. Now, I feel comfortable with my body, in my body and with the way I look.鈥

In the end, Payne said, being able to get the surgery through her Covered California plan 鈥渢urned out to be a pretty good deal.鈥 The insurance company picked up most of the costs, she said. 鈥淚t was fair and affordable.鈥

Payne said she feels like her story isn鈥檛 so novel anymore, because more and more transgender people are able to get their private insurance and Medicare to cover their operations. 鈥淭he great thing is that there is so much visibility,鈥 she said.

Now 44, Payne said she is focusing on raising her children. They are also healthy, and have only used the insurance plan for routine physicals and immunizations, she said.

The family is planning to embark on a new adventure 鈥 a move out of state. Payne said she feels confident that wherever they end up, she will not have to worry about being denied insurance.

鈥淲ith Obamacare, I know I will get insurance 鈥 and I know it鈥檚 going to be affordable,鈥 she said. 鈥淚t is not as big of an issue.鈥

Related Topics

InsuranceAffordable Care ActCost and QualityCalifornia

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