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How The Eastern Cherokee Took Control Of Their Health Care

An innovative hospital run by the Eastern Band of Cherokee Indians in North Carolina showcases an alternative model of health care that could have lessons for other tribal communities and beyond. (Katja Ridderbusch for KHN)

CHEROKEE, N.C. 鈥 Light pours through large windows and glass ceilings of the Cherokee Indian Hospital onto a fireplace, a waterfall and murals. Rattlesnake Mountain, which the Cherokee elders say holds ancient healing powers, is visible from most angles. The hospital鈥檚 motto 鈥 鈥淣i hi tsa tse li鈥 or 鈥淚t belongs to you鈥 鈥 is written in Cherokee syllabary on the wall at the main entrance.

鈥淚t doesn鈥檛 look like a hospital, and it doesn鈥檛 feel like a hospital,鈥 Kristy Nations said on a recent visit to pick up medications at the pharmacy. 鈥淚t actually feels good to be here.鈥

Profits from the tribe鈥檚 casino have helped the 12,000 members of the Eastern Band of Cherokee Indians opt out of the troubled U.S. government-run Indian Health Service. They are part of an expanding experiment in decentralization, in which about 20% of federally recognized tribes in Oklahoma, California, Arizona and elsewhere have been granted permission to take full control of their health care.

For the North Carolina Cherokee, self-governance has meant adopting an integrated care model designed by Alaska Natives to deliver care that not only improves patients鈥 health, but also is tailor-made for the needs of the tribe. It has meant the opening of a 20-bed state-of-the-art facility in 2015 and the construction of an 18-bed mental health clinic scheduled to open in October 2020.

The hospital is a 鈥渕edical home for our people,鈥 said Casey Cooper, the hospital鈥檚 CEO who is a member of the tribe.

Half of the Indian Health Service budget is now managed by Indian tribes to various degrees. But while full control has worked out well for tribes with resources like the Eastern Cherokee, they are one of just a few bright spots in an otherwise dire medical landscape. It remains to be seen how widely this model can be applied.

鈥淣ot all tribal communities have access to the economic opportunities that we have,鈥 Cooper said. 鈥淪ome tribes are in these desolate, remote locations where there are no natural resources or economic development opportunities. I get that.鈥

Casey Cooper, CEO of the Cherokee Indian Hospital(Katja Ridderbusch for KHN)

Self-Governing To Change The Narrative

The U.S is legally obligated to offer health services to all members of the 573 federally recognized tribes. Yet the federal Indian Health Service, which currently provides direct care to about 2.2 million out of the nation鈥檚 estimated 3.7 million American Indians and Alaska Natives, is chronically underfunded. The current IHS budget is about $5.4 billion, yet the National Indian Health Board estimates the total .

American Indians are more than twice as likely to get diabetes and six times as likely to get tuberculosis than the average U.S. population. Mental illness, and especially substance abuse, runs high in Indian Country. Native Americans are than any other ethnic or racial group.

Health disparities are particularly harsh in the Northern Plains region. In the Dakotas, average life expectancy among American Indians is 20 years less than among white Americans.

鈥淵ou do not have to cross an ocean to find Third World health conditions,鈥 said Dr. Donald Warne, a professor of public health at the University of North Dakota and an Oglala Lakota tribesman. 鈥淵ou can find them right here, in the heartland of the United States.鈥

One particularly grim example is the Rosebud Indian Reservation in South Dakota. In 2015, the Centers for Medicare & Medicaid Services found so severe that they shut down the emergency room for six months. During this time, at least five patients died en route to other hospitals located sometimes 100 or more miles away. , the situation has only slightly improved.

鈥淭he Indian Health Service respects tribal sovereignty and is committed to tribal self-governance,鈥 said IHS spokesman Joshua Barnett. 鈥淚HS recognizes that tribal leaders and members are in the best position to understand the health care needs and priorities of their communities.鈥

Self-governance also allows tribes to be eligible for Medicare, Medicaid, private-sector health insurance, partnerships with larger health systems and even federal grants that are designed for underserved communities 鈥 all which can be limited for the IHS.

鈥淕enerally speaking, tribally operated health care systems tend to run more efficiently, more effectively and with higher quality of care than IHS-managed systems,鈥 said Warne.

The 155,000-square-foot, 20-bed Cherokee Indian Hospital rests on a small knoll in western North Carolina. (Katja Ridderbusch for KHN)

The hospital serves over 12,000 members of the Eastern Band of Cherokee Indians who live on the Qualla Boundary, at the foothills of the Great Smoky Mountains National Park. (Katja Ridderbusch for KHN)

Money Makes A Difference

The Cherokee Indian Hospital is lucky to be supported by a tribe that鈥檚 economically thriving due to gambling revenues, according to Cooper. The Qualla Boundary is home to Harrah鈥檚 Cherokee Casino Resort. It鈥檚 a unique situation, said Indian health expert Warne, as most reservation casinos don鈥檛 make huge profits.

The hospital鈥檚 annual budget has grown from $20 million to over $80 million within the past 17 years. The largest sources are third-party reimbursements, mostly from Medicaid and Medicare, at $27.4 million, followed by IHS contributions and tribal funding.

In 2012, the hospital decided to implement a new, patient-centered approach called the , created by the Southcentral Foundation, a nonprofit health provider owned and led by Alaska Natives. A Cherokee delegation visited a Nuka program to see how it could be tailored to their culture and health needs.

鈥淎n integrated approach is more consistent with traditional healing,鈥 Warne said. Since 鈥渨e don鈥檛 separate our physical, mental, spiritual and emotional health the way we do in modern specialized health care.鈥

At Cherokee Indian Hospital, patients are assigned a team, which typically includes a primary care physician or a family nurse practitioner as well as a nutritionist, a pharmacist and a behavioral health specialist.

Rebuilding their health care prompted the need for the new hospital. Gambling revenue covered most of the costs for the $82 million facility. 鈥淭he old building was outdated and inefficient,鈥 said Cooper, 鈥渁 constant reminder of the paternalistically provided Indian Health Service.鈥

Dr. Richard Bunio, Cherokee Indian Hospital鈥檚 clinical director(Katja Ridderbusch for KHN)

The new hospital鈥檚 main concourse 鈥 called Riverwalk 鈥 tells stories from Cherokee legend through graphics of a winding river, fish and turtles inlaid in the terrazzo floor. Signs are written in English and Cherokee. A literal translation of the emergency room sign is 鈥淕et better in a hurry,鈥 and the dental suite is 鈥渢he place that gives you a big smile.鈥

Patients can receive dialysis, acupuncture, massage therapy and chiropractic care. The ambulance bay, surgical suite and in-patient unit are located out of patients鈥 view to reduce anxiety and stress.

鈥淭he building really is one big strategic tool,鈥 Cooper said.

Nations, the patient visiting recently, remembers the old days when she and her family, many of them dealing with diabetes and some on dialysis, used to wait for hours in the former hospital, a dark space dubbed 鈥渢he bunker.鈥

The 46-year-old said that she鈥檇 typically see different providers every visit. 鈥淎nd every time I would have to tell my story over and over and over.鈥 Now, she feels somewhat accountable to her care team 鈥 and more motivated to make and keep appointments.

鈥淏ack then, if my provider had wanted me to see a nutritionist, for example, I would have probably said, 鈥榃hatever,鈥 and forgotten about it,鈥 she said.

鈥淲e鈥檙e trying to build a relationship with our patients,鈥 said Richard Bunio, the Cherokee Indian Hospital鈥檚 clinical director who is Canadian and married to a tribe member. He noted that Native Americans generally have suffered a lot of historical trauma, leading to deeply rooted mistrust of mainstream medicine.

By quality measures, including the , the hospital has recently performed in the top quartile for blood pressure control, blood sugar control and several cancer screenings. Also, Cooper added that in the past four years the diabetes rate in the community has leveled.

At Cherokee Indian Hospital, patients are assigned a core team, which typically includes a primary care physician or a family nurse practitioner as well as a case manager and a scheduler. Three core teams share a nutritionist, a pharmacist and a behavioral health specialist. Pictured (left to right) are certified nursing assistant Katelynn Sides, registered nurse Nicole Dyck, family nurse practitioner Tracy Birchfield and licensed practical nurse Crissy Smith.(Katja Ridderbusch for KHN)

Could It Work Everywhere?

It is uncertain if self-governance would work for tribes such as the Rosebud Sioux or the Oglala Lakota on the Pine Ridge Indian Reservation, where geographic isolation, poverty and a lack of resources make new health care investments difficult.

鈥淚t鈥檚 a huge challenge, but it鈥檚 possible,鈥 said Warne, adding that philanthropy or partnerships with an academic health system might help finance such projects.

Not too long ago, tribal officials from South Dakota visited the Cherokee Indian Hospital. Despite their geographic and socioeconomic challenges, Cooper said, he believes self-determination is essential for their future. 鈥淪elf-determination works. Self-determination is the right thing. And self-determination is the catalyst to restoring the health of our communities.鈥

Yet many of the South Dakota tribal leaders remain skeptical. They are concerned that self-determination would let the federal government off the hook from its responsibility to provide health services.

Therefore, the Rosebud Sioux took a different route. Instead of just parting ways with the IHS, they sued the federal government for violating treaties. The case is pending in court.

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