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鈥業 Couldn鈥檛 Let Her Be Alone鈥: A Peaceful Death Amid the COVID Scourge

As her mother lay dying in a Southern California hospital in early May, Elishia Breed was home in Oregon, 800 miles away, separated not only by the distance, but also by the cruelty of the coronavirus.

Because of the pandemic, it wasn鈥檛 safe to visit her mom, Patti Breed-Rabitoy, who had entered a hospital alone, days earlier, with a high fever and other symptoms that were confirmed to be caused by COVID-19.

Breed-Rabitoy, 69, had suffered from lung and kidney disease for years but remained a vital, bubbly presence in the lives of her husband, Dan Rabitoy, and three grown children. She was a longtime church deacon and youth leader in Reseda, California, a fan of garage sales, bingo games and antique dolls. Then came COVID-19, likely contracted in late April following one of her thrice-weekly dialysis sessions. Now she lay sedated and on a ventilator, her life ebbing, with no family by her side.

鈥淚 had seen these things on TV and I would pray for those people and say, 鈥業 can鈥檛 imagine what they鈥檙e going through,鈥欌 said Breed, 44. 鈥淎nd now I was living it.鈥

A single mom of two young sons, she was wrenched with guilt at not being with her mother. 鈥淵ou always picture you鈥檙e going to be right by your parent鈥檚 side,鈥 she said.

Unlike many families of dying COVID patients, Breed and her family were able to find some comfort in her mother鈥檚 final hours because of the , a UCLA Health end-of-life program repurposed to meet the demands of the coronavirus crisis. In the U.S., where more than 120,000 people have died of COVID, it鈥檚 part of a wider push for palliative care during the pandemic.

At 5 p.m. on May 10, Mother鈥檚 Day, before Breed-Rabitoy鈥檚 life support was removed, more than a dozen family members from multiple cities and states gathered on a Zoom call to say goodbye. John Denver鈥檚 鈥淩ocky Mountain High,鈥 one of her soft-rock 鈥70s favorites, played on speakers. Online, a chaplain prayed.

Breed-Rabitoy had been deeply sedated for more than a week, since a terrible night when she struggled to breathe and asked doctors to place her on the ventilator. Confusion abounded, Breed said. Could her mom still hear in that state? Two nights in a row, Breed asked nurses to prop a phone near her mom鈥檚 ear.

鈥淚 prayed with her. I sang her favorite songs. I read her the Bible,鈥 she said.

Finally, a nurse gently explained that her mother was too sick to recover. If they removed the ventilator, it would be to allow her to die.

That鈥檚 when hospital staffers described the 3 Wishes program and asked whether the family had any personal requests for her last moments. They decided on the music and the family Zoom call. Dan Rabitoy requested that a nurse hold his wife鈥檚 hand as she died.

After it was over, family members received keychains stamped with her fingerprint and a copy of the electrocardiogram of the last beats of her heart.

鈥淚鈥檓 grateful to have these keepsakes,鈥 Breed said. 鈥淎ll these things have been healing.鈥

The project was developed in Canada but co-launched at UCLA Health in 2017 by Dr. Thanh Neville, an intensive care physician who serves as 3 Wishes鈥 medical director. It aims to make the end of life more dignified and personalized by fulfilling small requests for dying patients and their families in the ICU.

Before COVID-19, the program had granted nearly 1,600 wishes for more than 450 patients, nearly all in person. The deathbed scenarios have varied, from music and aromatherapy at the bedside to meeting a patient鈥檚 request for one last mai tai cocktail.

鈥淲e鈥檝e done weddings and mariachi bands and opera singers and 20 to 30 family members who could come in and celebrate,鈥 said Neville, 41. 鈥淎nd none of this is possible anymore.鈥

COVID-19 has 鈥渃hanged everything,鈥 said Neville, a researcher who focuses on improving ICU care for the dying. Also a clinician, she spent weeks this spring tending to seriously ill COVID patients. Since March, her hospital system has seen more than two dozen COVID deaths.

In the beginning, visitors were strictly prohibited. Now, some may come 鈥 but many don鈥檛.

鈥淚 would still say the majority of COVID patients die without families at their bedside,鈥 Neville said. 鈥淭here are a lot of reasons why they can鈥檛 come in. Some are sick or old or they have small kids. A lot of people don鈥檛 want to take that risk and bring it home.鈥

It has been hard to keep 3 Wishes going during a time when in-person memorials and celebrations are banned and infection control remains the primary focus. Neville even had to change the way the fingerprint keychains were made. Now, they鈥檙e treated with germicidal irradiation, the same method that lets health care workers reuse N95 masks.

The 3 Wishes Project is offered when death is imminent: Patients are enrolled after a decision has been made to withdraw life-sustaining technology or if the chance of death is greater than 95%. The program was created to help patients, caregivers and clinicians navigate the dying process in a less clinical, more humane way. Wishes needn鈥檛 be limited to three, and they can be articulated by patients, family members or hospital staffers.

The program is based on palliative care tenets that focus on the humanity of the patient amid intensive medical care, said Dr. Rodney Tucker, president of the American . Seemingly small acts that honor an individual life help counter the efficiency-driven environment of the ICU, which can be dehumanizing. They鈥檙e at the core of care that has been shown to ease both angst for the dying and grief for those who loved them. 鈥淚t helps the family that鈥檚 left behind cope more successfully with the loss,鈥 he said.

Such efforts also remind providers of the humanity of their practice, which can help them cope with the stress of witnessing death daily, especially during something as extraordinary as a pandemic, he said.

A by Neville and colleagues last year found that 3 Wishes is a 鈥渢ransferrable, affordable, sustainable program鈥 that benefits patients, families, clinicians and their institutions. They calculated that the mean cost of a single wish, funded by grants and donations, was $5.19.

Genevieve Arriola, 36, has been a critical care nurse for eight years. When the pandemic struck, she found herself juggling medical care and emotional support more than ever. She took care of Breed-Rabitoy for three days straight, all the while communicating with the dying woman鈥檚 family.

鈥淭his was a very delicate situation for someone who is married to her for over 20 years and a daughter who was miles away in Oregon and couldn鈥檛 see her mom,鈥 she said.

She was also the nurse who held Breed-Rabitoy鈥檚 hand as she died.

鈥淚 pretty much felt honored to be that person,鈥 Arriola said. 鈥淚 couldn鈥檛 let her be alone. If no one can be there, I can.鈥

Weeks after her mother鈥檚 death, Breed is grappling with the loss. The last time she saw her mom was March 16, at a McDonald鈥檚 off Interstate 5 near Grants Pass, Oregon.

The pair met for less than 30 minutes before Breed-Rabitoy headed south down the interstate, her long-planned family visit cut short by concerns about COVID. She had just learned that the local dialysis center was closed to outside patients, and she was worried about growing reports of infection and death. 鈥淪he told me, 鈥業 feel like this disease is coming after me,鈥欌 Breed recalled.

Now, the keepsakes from 3 Wishes are placed where Breed can see them every day.

鈥淚t added such a level of love and dignity we weren鈥檛 expecting,鈥 she said. 鈥淚t made the process of losing a loved one to COVID-19 so much more bearable.鈥

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