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Reverberations From War Complicate Vietnam Veterans鈥 End-Of-Life Care

Many of Ron Fleming鈥檚 fellow soldiers have spent the past five decades trying to forget what they saw 鈥 and did聽鈥 in Vietnam.

But Fleming, now 74, has spent most of that time trying to hold on to it. He鈥檚 never been as proud as he was when he was 21.

Fleming was a door gunner in the war, hanging out of a helicopter on a strap with a machine gun in his hands. He fought in the of 1968, sometimes for 40 hours straight, firing 6,000 rounds a minute. But he never gave much thought to catching a bullet himself.

鈥淎t 21, you鈥檙e bulletproof,鈥 he said, as he sat on the edge of his hospital bed at the San Francisco VA Medical Center. 鈥淒ying wasn鈥檛 on the agenda.鈥

Now it is. Fleming has congestive heart failure and arthritis, and his asthma attacks often land him in the hospital. Ten years ago, he was diagnosed with (PTSD), which makes him quick to anger and hypervigilant, as if he鈥檚 still in that helicopter.

Fleming鈥檚 physical and mental health symptoms, combined with his military history, are a challenge to the VA鈥檚 palliative care team, which is coordinating his care as his health deteriorates. It is a challenge they are facing more often as Vietnam veterans age and develop life-threatening illnesses.

For some veterans, the stoicism they honed on the battlefield often returns full-force as they confront a new battlefront in the hospital, making them less willing to admit they are afraid or in pain, and less willing to accept treatment. Other vets, with PTSD, are even more reluctant to take pain-relieving opioids because the drugs can actually make their symptoms worse, triggering frightening flashbacks.

About 30 percent of Vietnam vets have had PTSD in their lifetime, the highest rate among veteran groups, according to the . Their rate is higher because of the unique combat conditions they faced and the negative reception many of them received when they returned home, according to numerous .

Since the war, many vets have developed coping strategies to keep disturbing memories and other PTSD symptoms at bay. But facing a terminal illness 鈥 the severe pain of cancer, the nausea of chemotherapy or the breathlessness of heart failure 鈥 can drain their energy so much that they鈥檙e unable to maintain their mental defenses. Vets previously diagnosed with PTSD can slip out of remission, and some may experience it for the first time.

鈥淭hey鈥檙e so distracted trying to cope with their physical symptoms that they might have flashbacks,鈥 said VJ Periyakoil, a palliative care physician at the VA Palo Alto Health Care Center聽and director of palliative care education at Stanford University. 鈥淲ar memories start coming back; they start having nightmares.鈥

Gasping for breath can induce panic for anyone, but it can make vets feel as threatened as they did in a combat zone, said Eric Widera, director of hospice and palliative care at the San Francisco VA and professor of geriatrics at the University of California-San Francisco.

That鈥檚 what happens to navy vet Earl Borges, who logged 240 24-hour river patrols in Vietnam with three other men on a plastic boat, constantly looking for enemy soldiers in the brush.

Since then, he鈥檚 been startled by loud noises and fast-moving shadows. Now, at age 70, Borges has (ALS) and chronic obstructive pulmonary disease, or COPD, which can intensify the anxiety from his PTSD.

If he lies down without his breathing machine, he panics, then hyperventilates.

鈥淚 have to talk him through it, tell him he鈥檚 OK, 鈥榡ust breathe,鈥欌 said his wife, Shirley Borges, 67.

Earl Borges conducted river patrols in Vietnam. Now 70, the symptoms from his amyotrophic lateral sclerosis and chronic obstructive pulmonary disease can intensify the anxiety he experiences as a result of PTSD. (Courtesy of Shirley Borges)
Borges in 1967 before deploying for service on a guided missile destroyer that conducted missions off the coast of Vietnam. The following year, he served on a boat patrolling Vietnamese rivers. (Courtesy of Shirley Borges)

They both say Earl鈥檚 PTSD is under control 鈥 as long as he doesn鈥檛 talk about the war聽鈥 and his ALS is progressing very slowly, without pain.

But for patients who are in severe pain, the go-to treatment is opioids, which can also make PTSD symptoms worse. This forces vets to choose between physical pain and mental anguish.

鈥淥ftentimes, pain medications like morphine or oxycodone make some people feel a little bit fuzzy,鈥 Widera said. 鈥淭hat may contribute to that feeling of loss of control.鈥

That鈥檚 why Periyakoil isn鈥檛 surprised when vets refuse pain medications.

鈥溾楧on鈥檛 you try and give me none of those narc pills, doc,鈥欌 she recalled one of her patients saying while he grimaced in pain.

Some vets also refuse medication because they feel as if they deserve the pain.

鈥淲e see a lot of feelings of guilt over what they鈥檝e seen and done during their experience in Vietnam,鈥 Widera said, 鈥渁nd they don鈥檛 want to blunt that.鈥

At the end of life, this sense of guilt is amplified as vets look back and review their lives and, perhaps, contemplate the consequences of their actions in the line of duty. This is even true for vets like Fleming, whose overriding feeling about his service is pride.

鈥淪ometimes I think that now I鈥檓 being paid back for all the men I killed. And I killed a lot of them,鈥 said Fleming, who has not required opioids for his condition, but has declined other medications.

鈥淚f there is a judge, I figure I鈥檓 going to hell in a handbasket,鈥 he said.

Watching vets choose to endure their pain can be hard for families, as well as for palliative care doctors and nurses. Just like soldiers, doctors hate doing nothing.

鈥淪taff suffer terribly because they feel like, 鈥榃hat good are the hospice experts if we can鈥檛 take care of patients鈥 pain?鈥欌 Periyakoil said.

Often, the only thing they can do is stand back and respect the vets鈥 choice to bear their pain, she said.

Once, when Periyakoil was dressing the ulcer wounds of the patient who refused 鈥渘arc pills,鈥 he began talking about the war. She didn鈥檛 press, just kept working quietly on the wounds. As he stared at the ceiling, wincing, he confided in her about a time he was forced to kill a pregnant teenager.

But this kind of revelation is unusual. With weeks or months left to live, after a lifetime of silence about their most horrifying memories, there often isn鈥檛 enough time for vets to talk about them at all.

That鈥檚 one reason the VA has been trying to start end-of-life care earlier 鈥 to address vets鈥 moral distress or PTSD years before they land in hospice, Widera said.

Fleming鈥檚 doctors, for instance, have urged him to consider mental health counseling or antidepressants. He refuses.

鈥淚 don鈥檛 want to take psychiatric drugs,鈥 he said. 鈥淭he vets call them the happy pills. I don鈥檛 want any of those, because they change you. I don鈥檛 want to change.鈥

The emotional pain connects Fleming to his past.

He was awarded 18 Air Medals for meritorious acts and heroism in flight. The loss and grief he experienced in Vietnam are woven into those memories of victory and glory.

鈥淵ou see all the combat. There鈥檚 a charge to it,鈥 he said. "And after a while, it bites you right in the ass. And once you鈥檝e been bit, you鈥檙e bit for life. Nothing else works.鈥

This story is part of a partnership that includes , and Kaiser Health News, an editorially independent program of the .

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