It was a promise Matt Perrin wasn鈥檛 able to keep.
鈥淚鈥檒l never take away your independence,鈥 he鈥檇 told his mother, Rosemary, then 71, who lived alone on Cape Cod, Mass., in a much-loved cottage.
That was before Rosemary started calling Perrin and her brother, confused and disoriented, when she was out driving. Her Alzheimer鈥檚 disease was progressing.
Worried about the potential for a dangerous accident, Perrin took away his mother鈥檚 car keys, then got rid of her car. She was furious.
For family caregivers, this is a common, anxiety-provoking dilemma. They鈥檒l promise Mom or Dad that they can stay at home through the end of their lives and never go to assisted living or a nursing home. Or they鈥檒l commit to taking care of a spouse鈥檚 needs and not bringing paid help into the home. Or they鈥檒l vow to pursue every possible medical intervention in a medical crisis.
Eventually, though, the unforeseen will arise 鈥 after a devastating stroke or a heart attack, for instance, or a diagnosis of advanced cancer or dementia 鈥 and these promises will be broken.
Mom or Dad will need more care than can be arranged at home. A husband or wife won鈥檛 be able to handle mounting responsibilities and will need to bring in help. A judgment call 鈥 鈥渢his will only prolong suffering, there鈥檚 no point in doing more鈥 鈥 will be made at the bedside of someone who is dying.
鈥淲e want to give loved ones who are sick or dying everything we think they want 鈥 but we can鈥檛,鈥 said Barbara Karnes, 78, an end-of-life educator and hospice nurse based in Vancouver, Wash. 鈥淎nd then, we feel we鈥檝e failed them and guilt can stay with us for the rest of our lives.鈥
She hasn鈥檛 forgotten an experience with her mother-in-law, Vi, who moved in with Karnes, her husband and two children after becoming a widow 30 years ago. At the time, Vi was in her 70s, weak and frail. Karnes was working full time and keeping the household going.
鈥淢y mother-in-law and I got into a disagreement, I don鈥檛 remember what it was about. But I remember her saying to me, 鈥榊ou promised you would take care of me,鈥 and making it clear that she felt I鈥檇 let her down. And I said, 鈥業 know, I was wrong 鈥 I can鈥檛 do it all,鈥欌 she remembered. 鈥淚 still feel bad about that.鈥
鈥淣o caregiver I know sets out to deceive another person: It鈥檚 just that none of us have a crystal ball or can predict what the future will hold,鈥 she said. 鈥淎nd the best we can do isn鈥檛 always as much as we thought was possible.鈥 鈥淲e have to figure out a way to forgive ourselves.鈥
Richard Narad, 64, a professor of health services administration at California State University, spent months after his wife鈥檚 death in December 2011 mentally reviewing the last hours of her life before achieving a measure of peace.
His wife, April, was diagnosed with Type 1 diabetes at age 5 and was legally blind when the couple married in 1994. A year later, she had the first of a series of strokes. Eventually, April was diagnosed with congestive heart failure. In the last 18 months of her life, she was hospitalized 13 times.
April Narad had told her husband she wanted 鈥渇ull code鈥 status in the event of an emergency 鈥 in other words, 鈥渄o everything possible to keep me alive.鈥 But she was nervous about his willingness to honor her wishes because his own end-of-life views differed from hers.
鈥淚 think certain care is futile and you need to give up earlier,鈥 he explained.
In the end, April was rushed to the hospital one night after dinner, gasping for breath. There, Narad directed medical staff to pursue 鈥渇ull code鈥 interventions. But when a physician came out to tell him that death appeared inevitable, Narad remembers saying, 鈥淲ell, if that鈥檚 the case, just call it.鈥
Had he broken a promise to insist that other treatments be tried? Narad spent months wondering but eventually accepted that he acted in good faith and couldn鈥檛 have saved April鈥檚 life.
With illness, older couples can end up re-evaluating commitments they鈥檝e made. Kathy Bell, 66, of Silver Spring, Md., promised her husband, Bruce Riggs, 82, that she鈥檇 stay with him 鈥渢hrough all the changes in our lives鈥 when they married in 1987. Then in August 2011, he received a diagnosis of Alzheimer鈥檚.
The couple moved into a senior living facility, but as Riggs鈥 condition worsened he had to go to a memory care facility in 2014. The following year, Bell had lunch with a man whose wife lived at the same facility. He told her his therapist had recommended he start dating.
鈥淭hat planted the idea of possibly doing this myself at some point,鈥 Bell said, and two years ago she met a man who has become a regular companion.
Does she feel she鈥檚 broken her promise to her husband, who was committed to a monogamous marriage? 鈥淣o, I don鈥檛,鈥 Bell said, adding that 鈥渋t鈥檚 not clear whether he knows me at this point. He doesn鈥檛 talk. The way I view it: I still love him. I still go to see him. I鈥檓 still taking care of him.鈥
Promises can be explicit 鈥 spoken aloud 鈥 or implicit, understood without direct communication. Both kinds can inspire regret.
Debra Hallisey, 62, a caregiver consultant based in Lawrenceville, N.J., describes making an unspoken promise to her father, Don, when he was diagnosed with congestive heart failure in 2014. Their agreement, which was never voiced: Neither would tell Hallisey鈥檚 mother, Doris 鈥 who has diabetes, mobility issues and is legally blind 鈥 how sick he was.

鈥淚 knew he was shielding [Mom] from knowing the truth. When she would ask questions, he wouldn鈥檛 say anything,鈥 Hallisey said. Because her mother was disabled, Hallisey accompanied her father to doctor鈥檚 appointments.
When Hallisey鈥檚 father died in February 2015, Doris was profoundly shocked and Hallisey was overcome by remorse. 鈥淚t was then, I said to my mother, 鈥楳ommy, there are no more secrets. If something is wrong, I am going to tell you, and together we鈥檙e going to determine the best thing to do,鈥欌 she said.
In line with that promise, Hallisey has been direct with her mother, who uses a walker to get around her home in Somerset, N.J., and has round-the-clock home care. If and when Doris becomes unable to walk, she鈥檒l have to move, Hallisey has said.
鈥淚鈥檝e told her, 鈥楳ommy, I鈥檒l do everything to keep you in this house, but you have to use your walker and work at staying strong. A wheelchair won鈥檛 work in your house,鈥欌 Hallisey said. 鈥淚 know that keeping her at home is a promise I may not be able to keep.鈥
Matt Perrin made the decision to move his mother, Rosemary, to assisted living in 2017, after realizing he couldn鈥檛 coordinate care for her escalating needs at a distance. (Rosemary lived on Cape Cod; Perrin lived in New Hampshire.) Because he鈥檇 vowed to protect her independence, 鈥淚 felt so guilty 鈥 a guilt that I had never felt before,鈥 he admitted.
Rosemary resisted the move passionately, but after a few months settled into her new home.
鈥淚 felt relief then, and I still do,鈥 Perrin said. 鈥淚 wish I didn鈥檛 make that promise to my mom, and I wish she weren鈥檛 living with Alzheimer鈥檚. But I鈥檓 thankful that she鈥檚 in a place that鈥檚 really good for her, all things considered.鈥
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