It was a memorable place to have an 鈥渁ha鈥 moment about aging.
Peter Sperry had taken his 82-year-old father, who鈥檇 had a stroke and used a wheelchair, to Disney World. Just after they鈥檇 made their way through the Pirates of the Caribbean ride, nature called. Sperry took his father to the bathroom where, with difficulty, he changed the older man鈥檚 diaper.
鈥淚t came to me then: There isn鈥檛 going to be anyone to do this for me when I鈥檓 his age, and I needed to plan ahead,鈥 said Sperry, now 61, recalling the experience several years ago.
Sperry never married, has no children and lives alone.
Like other 鈥渆lder orphans鈥 (older people without a spouse or children on whom they can depend) and 鈥渟olo agers鈥 (older adults without children, living alone), he鈥檚 expecting to move through later life without the safety net of a spouse, a son or a daughter who will step up to provide practical, physical and emotional support over time.
About 22 percent of older adults in the U.S. fall into this category or are at risk of doing so in the future, according to a .
鈥淭his is an often overlooked, poorly understood group that needs more attention from the medical community,鈥 said Dr. Maria Carney, the study鈥檚 lead author and chief of the division of geriatrics and palliative medicine at Northwell Health in N.Y. It鈥檚 also an especially vulnerable group, according to a of 500 people who belong to the , with 8,500 members.
Notably, 70 percent of survey respondents said they hadn鈥檛 identified a caregiver who would help if they became ill or disabled, while 35 percent said they didn鈥檛 have 鈥渇riends or family to help them cope with life鈥檚 challenges.鈥
鈥淲hat strikes me is how many of these elder orphans are woefully unprepared for aging,鈥 said Carney, who reviewed the survey at my request.
Financial insecurity and health concerns are common among the survey respondents: a non-random sample consisting mostly of women in their 60s and 70s, most of them divorced or widowed and college-educated.
One-quarter of the group said they feared losing their housing; 23 percent reported not having enough money to meet basic needs at least once over the past year; 31 percent said they weren鈥檛 secure about their financial future.
In the survey, 40 percent of people admitted to depression; 37 percent, to anxiety. More than half (52 percent) confessed to being lonely.
Carol Marak, 67, who runs the Facebook group, understands members鈥 insecurities better than ever since suffering an accident several weeks ago. She cut her finger badly on a meat grinder while making chicken salad for dinner guests. Divorced and childless, Marak lives alone in an apartment tower in Dallas. She walked down the hall and asked neighbors 鈥 a married couple 鈥 to take her to the emergency room.
鈥淚 freaked out 鈥 and this wasn鈥檛 even that big of a deal,鈥 Marak said. 鈥淚magine people like me who break a hip and have a long period of disability and recovery,鈥 she said. 鈥淲hat are they supposed to do?鈥
Sperry has thought a lot about who could be his caregiver down that road in a circumstance like that. No one fits the bill.
鈥淚t鈥檚 not like I don鈥檛 have family or friends: It鈥檚 just that the people who you can count on have to be specific types of family and friends,鈥 he said. 鈥淵our sister or brother, they may be willing to help but not able to if they鈥檙e old themselves. Your nieces and nephews, they may be able, but they probably are not going to be willing.鈥
The solution Sperry thinks might work: moving to a continuing care retirement community with different levels of care when he begins to become less independent.听 That鈥檚 an expensive proposition 鈥 entry fees range from about $100,000 to $400,000 and monthly fees from about $2,000 to $4,000.
Sperry, a longtime government employee, can afford it, but many people aging alone can鈥檛.
Sperry also has a short-term plan: He wants to retire next year and relocate from Woodbridge, Va., to Greenville, S.C. 鈥 a popular retirement haven 鈥 in a home with design features to help him age in place. Those plans could be upended, however, if his widowed mother in Pennsylvania requires extra care.
In the meantime, Sperry is resolved to be pragmatic. 鈥淒o I look at my situation and say 鈥楪ee, there鈥檚 not going to be anyone there for me鈥 and start feeling sorry for myself? Or do I say 鈥楪ee, I鈥檇 better figure out how I鈥檓 going to take care of myself?鈥 I鈥檓 not going with pity 鈥 I don鈥檛 think that would be very pleasant,鈥 he said.
Planning for challenges that can arise with advancing age is essential for people who go it alone, advised Sara Zeff Geber, a retirement coach and author of 鈥 A Retirement and Aging Roadmap for Single and Childless Adults.鈥 A good way to start is to think about things that adult children do for older parents and consider how you鈥檙e going to do all of that yourself or with outside assistance, she said.
In her book, Geber lists the responsibilities that adult children frequently take on: They serve as caregivers, help older parents figure out where to live, provide emotional and practical support, assist with financial issues such as managing money, and agree to serve as health care or legal decision-makers when a parent becomes incapacitated. Also, older parents often rely on adult children for regular social contact and a sense of connectedness.
In New York, Wendl Kornfeld, 69, began running year-long workshops for small groups of solo agers four years ago. Though married, she and her 80-year-old husband consider themselves future solo agers living together. 鈥淲e figured out a long time ago one of us was going to survive the other,鈥 she said.
At those gatherings, Kornfeld asked people to jettison denial about aging and imagine the absolute worst things that might happen to them, physically and socially. Then, people talked about how they might prepare for those eventualities.
鈥淭he whole purpose of these get-togethers was to be fearless, face issues head-on and not keep our heads in the sand,鈥 Kornfeld said. 鈥淭hen, we can plan for what might happen, stop worrying and start enjoying the best years of our lives.鈥
Kornfeld took her program to New York City鈥檚 Temple Emanu-El three years ago and is working with several synagogues and churches interested in launching similar initiatives. Meanwhile, elder orphans have begun meeting in-person in other cities, including Chicago; Dallas; Portland, Ore.; San Diego; and Seattle, after getting to know each other virtually on the Elder Orphan Facebook Group.
Kornfeld applauds that development. 鈥淪o many solo agers identify as being introverted or shy or impatient with other people. They have a million reasons why they don鈥檛 go out,鈥 she said. 鈥淚 tell people, this may be hard for you, but you鈥檝e got to leave the house because that鈥檚 where the world is.鈥
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