Family Caregivers Find Support on #dementia TikTok
The TikTok hashtag "dementia" has billions of views. Caregivers of people with Alzheimer's and other dementias have been using the site to swap tips and share the burdens of life with dementia.
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The TikTok hashtag "dementia" has billions of views. Caregivers of people with Alzheimer's and other dementias have been using the site to swap tips and share the burdens of life with dementia.
Two studies published this year provide evidence that older adults鈥 cognitive health may benefit if air quality is improved.
Private equity firms are seeing opportunities for profit in hospice care, once the domain of nonprofit organizations. The investment companies are transforming the industry 鈥 and might be jeopardizing patient care 鈥 in the process.
The unprecedented early leak of a Supreme Court draft opinion that would overturn the landmark abortion-rights ruling Roe v. Wade has heated the national abortion debate to boiling. Meanwhile, the FDA, after years of consideration, moves to ban menthol flavors in cigarettes and cigars. Joanne Kenen of the Johns Hopkins Bloomberg School of Public Health and Politico, Shefali Luthra of the 19th, and Jessie Hellmann of CQ Roll Call join KHN鈥檚 Julie Rovner to discuss these issues and more. Plus, Rovner interviews KHN鈥檚 Paula Andalo, who wrote the latest KHN-NPR 鈥淏ill of the Month鈥 episode about a family whose medical debt drove them to seek care south of the border.
Medicare has proposed limiting coverage of Aduhelm, the costly new drug to treat Alzheimer鈥檚 disease, and several prominent groups representing patients and their families are pressing the program to make it more widely available. But among individuals facing the disease, the outlook is more nuanced.
Nine seniors from across the country talk frankly about feeling alone and constrained, missing church, and family routines. They also share newfound hope and discoveries that arose from the crisis.
Medicare officials tentatively plan to restrict the use of a controversial Alzheimer鈥檚 drug to only those patients participating in clinical trials, while the Department of Health and Human Services looks into lowering the monthly Medicare Part B premium. Meanwhile, covid confusion still reigns, as the Biden administration moves, belatedly, to make more masks and tests available. Joanne Kenen of Politico and the Johns Hopkins Bloomberg School of Public Health, Sarah Karlin-Smith of the Pink Sheet and Rachel Cohrs of Stat join KHN鈥檚 Julie Rovner to discuss these issues and more.
The federal government is putting up $7.2 million for a study into the correlation between war trauma and dementia in Vietnamese immigrants. Oahn Meyer, an associate professor at the University of California-Davis who is leading the study, wonders whether her mother鈥檚 dementia is linked to trauma she suffered during the Vietnam War.
High-tech tools ease caregivers鈥 stress but can raise sticky privacy questions and concerns about cost.
The condition can be an early signal of Alzheimer鈥檚 disease, but not always. Other health concerns could be causing thinking or memory problems, and the new drug, Aduhelm, would not be appropriate for those patients.
The makers of Aduhelm, a drug approved last month despite concerns raised by experts about its effectiveness, have launched a website and ads designed to urge people who are worried about their memory to ask doctors about testing. But some health advocates say it is misleading because some memory loss with aging is normal.
The potential benefits of Aduhelm are small, its effectiveness is not certain, and even the FDA Thursday shifted its guidance on who should get the drug. But physicians are dealing with an onslaught of interest from patients and their families, and figuring out which patients are best positioned to be helped by the drug will be difficult.
Criminal charges filed against two officers who injured a Colorado woman with dementia don鈥檛 address the fact that police often lack the skills to effectively deal with suspects with mental disabilities.
The federal approval of a controversial drug to treat Alzheimer鈥檚 disease has reignited the debate over drug prices and the way the Food and Drug Administration makes decisions. Meanwhile, President Joe Biden seeks to gain goodwill overseas as he announces the U.S. will provide 500 million doses of covid vaccine to international health efforts. Sarah Karlin-Smith of the Pink Sheet, Margot Sanger-Katz of The New York Times and Joanne Kenen of Politico join KHN鈥檚 Julie Rovner to discuss these issues and more. Also, Rovner interviews Chiquita Brooks-LaSure, the new administrator of the Centers for Medicare & Medicaid Services. And to mark the podcast鈥檚 200th episode, the panelists discuss what has surprised them most and least over the past four years.
When the covid pandemic hit, Dr. Rebecca Elon was thrust into a new role, primary caregiver for her severely ill husband and her elderly mother. 鈥淩eading about caregiving of this kind was one thing. Experiencing it was entirely different,鈥 she says.
Long before they receive a dementia diagnosis, many people begin to mismanage their finances as their memory, organizational skills and self-control falter.
Arthur and Maggie Kelley of St. Louis died 30 days apart. Maggie died of complications of dementia in November. Arthur, who had moved into her nursing home to be with her, died a month later of covid. Their family held a double funeral.
Older patients with cancer, dementia or other serious illnesses should check with their doctors, but medical experts recommend the vaccine for most people.
COVID-19 has upended the lives of people with dementia, limiting their interactions with others and complicating matters for their caregivers.
Because seniors are at higher risk of cognitive impairment, proponents say screening asymptomatic older adults is an important strategy to identify people who may be developing dementia and to improve their care. But the U.S. Preventive Services Task Force cited insufficient evidence the tests are helpful.
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