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Tuesday, Apr 5 2016

Full Issue

Movement To Incorporate Patient-Generated Data Into Clinical Care Grows

New online tracking tools let patients and doctors speak the same language: data. “It allows both the patient and clinician to see information in real time, both as a method of surveillance to find things out that are better to act on now, but also as a more specific and accurate record of what’s working and for decision-making,” says Lisa Opipari-Arrigan, an associate professor at Cincinnati Children’s Hospital.

For Erin Moore, keeping her son’s cystic fibrosis in check requires careful monitoring to prevent the thick, sticky mucous his body produces from further damaging his lungs and digestive system. Moore keeps tabs on 6-year-old Drew’s weight, appetite, exercise and stools every day to see if they stray from his healthy baseline. When he develops a cough, she tracks that, too. It’s been nearly a year since Drew has been hospitalized; as a baby he was admitted up to four times annually. Erin Moore credits her careful monitoring, aided by an online data tracking tool from a program at Cincinnati Children’s Hospital Medical Center called the Orchestra Project, with helping to keep him healthy. (Andrews, 4/5)

In other health IT news, Boston's Massachusetts General Hospital has rolled out a new electronic health records system —

If things seem a little slow at Massachusetts General Hospital this week, blame the computers. Mass. General, a flagship teaching hospital of Partners HealthCare, launched a new electronic health records system over the weekend, part of a $1.2 billion upgrade over several years across the Partners system. (Dayal McCluskey, 5/5)

This is part of the Morning Briefing, a summary of health policy coverage from major news organizations. Sign up for an email subscription.
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