When people seek help at a drug treatment center for an opioid addiction, concerns about having contracted hepatitis C are generally low on their list.
They鈥檝e often reached a crisis point in their lives, said Marie Sutton, the CEO of , a consulting group that provides staff training and technical assistance to facilitate testing for the liver-damaging virus at more than 30 drug treatment centers in Georgia.
鈥淭hey just want to handle [their drug problem],鈥 she said. 鈥淪ometimes they don鈥檛 have the bandwidth to take on too many other things.鈥
Even though health care facilities that serve people who use drugs are well-positioned to initiate screening, too often that is not happening, recent studies have shown. Not testing these patients for hepatitis C is an enormous missed opportunity, public health experts agree.
鈥淚t鈥檚 a disease that can be cured the moment we identify somebody,鈥 said Tom Nealon, president and CEO of the American Liver Foundation. 鈥淣ot testing is incomprehensible when you look at what hepatitis C does to their bodies and their livers.鈥
As the number of people who inject drugs has soared, the rate of hepatitis C infection, frequently tied to sharing needles, has climbed steeply, too.
People who are infected with hepatitis C can go for years without symptoms, so they may not have any inkling that they鈥檙e sick. That delayed onset makes screening important, advocates say, since people may unwittingly infect others.
Screening people who misuse drugs for the deadly virus is a commonsense strategy to get people cured and break the cycle of transmission. But there are obstacles 鈥 sometimes a lack of money, staff or other resources.
鈥淩eimbursement rates for hepatitis C testing often don鈥檛 match the cost,鈥 said Andrew Reynolds, hepatitis C and harm reduction manager at Project Inform, an advocacy group. If patients test positive, they need to be linked to treatment, and financial support for staffing to do that is often limited, he said.
Only 27.5 percent of 12,166 substance abuse facilities reported offering testing for hepatitis C in 2017, according to on the blog for the journal Health Affairs in October. It is one of the first studies to look at this issue since the federal government began reporting on testing for HIV and hepatitis C in its national survey of substance abuse and treatment services in 2016.
When researchers narrowed their analysis to the much smaller number of opioid treatment programs that are federally certified to use methadone and other drugs in treatment, a higher, but still not overwhelming, proportion 鈥 just over 63 percent 鈥 said they offered screening for hepatitis C.
鈥淲e certainly thought the numbers would be higher,鈥 said Asal Sayas, a co-author of the analysis and director of government affairs at amfAR, the Foundation for AIDS Research. 鈥淭esting is one of the most fundamental forms of prevention.鈥
In primary care settings, the situation sometimes isn鈥檛 much better, even when patients have a diagnosed 鈥渙pioid-use disorder.鈥
An of nearly 270,000 medical records of people aged 13 to 21 who visited federally qualified health centers from 2012 to 2017 found that 36 percent of the 875 patients with that diagnosis were tested for hepatitis C.
鈥淓ven in a setting with an identified risk factor in opioid-use disorder, too few youths are being screened for hepatitis C,鈥 said Dr. Rachel Epstein, a postdoctoral research fellow in infectious diseases at Boston Medical Center and a co-author of the study, which was presented at the annual meeting of the Infectious Diseases Society of America in early October.
Hepatitis C is a , in some cases leading to scarring, liver cancer and death. It is transmitted through blood, including contaminated needles that people share when they inject drugs.
The initial test for hepatitis C is an inexpensive blood test to check for antibodies in the blood that indicate exposure to the virus. If that antibody test is positive, a is necessary to find out if the virus is circulating in the bloodstream, which would mean someone is infected with the virus. The secondtest can cost several hundred dollars, experts say.
To be sure, some federally qualified health centers have made testing for hepatitis C a priority. Clinicians at two community health centers聽run by聽Philadelphia FIGHT 鈥 which was established as an AIDS service organization 鈥 who are at high risk because of injection drug use or unsafe sexual practices, such as having sex with an infected partner. The screenings are often done on an annual basis, with a reminder to the medical personnel in the patient鈥檚 electronic medical record.
鈥淭hat鈥檚 something pretty basic that we鈥檝e done in our community health centers to make sure we鈥檙e testing people and providing a cure,鈥 said Dr. Stacey Trooskin, director of viral hepatitis programs at the FIGHT centers and clinical assistant professor at the University of Pennsylvania Perelman School of Medicine.
Among at least 3.5 million people who have the disease, most are baby boomers who were infected before began in the early 1990s. In recent years, as the drug epidemic has taken hold, among young people who inject drugs, in particular those between ages 18 and 29, according to the federal Centers for Disease Control and Prevention.
Complicating the effort to get people screened is the fact that many of the people who enroll in drug treatment programs are uninsured, said Imagine Hope鈥檚 Sutton. In states that have expanded Medicaid under the Affordable Care Act, the program generally picks up the tab for hepatitis C testing and treatment, though often with restrictions. But , including Georgia, haven鈥檛 expanded that coverage for adults with incomes up to 138 percent of the federal poverty level ($16,753 for one person).
Insurance coverage isn鈥檛 the only challenge. If people have to come back to a clinic for the second test, chances are they may fall through the cracks and not get that follow-up.
When a patient tests positive, a nurse or counselor at the drug treatment center, who is likely overbooked working with patients to address their addiction, must carve out time to explain this new diagnosis and talk through treatment options.
鈥淭here鈥檚 a whole system of care that needs to be built for these people and, unlike HIV, it doesn鈥檛 exist for hepatitis C at this time,鈥 Sutton said.
Like many other clinics around the country, hepatitis C testing at Georgia drug treatment centers is supported with funding from the Focus program, sponsored by drugmaker Gilead 鈥 the first company to offer a new class of highly effective drugs that generally cure hepatitis C in three months or less with few side effects.
Gilead didn鈥檛 respond to requests for comment.
Finding resources to pay for treatment is also difficult. The high costs of the new drugs when they were introduced led some public and private insurers to strictly limit access. But, in recent years, drug prices have come down as more drugs hit the market and many states have loosened Medicaid restrictions.
For example, New Mexico鈥檚 Medicaid program doesn鈥檛 require that people be sick or abstain from using illicit drugs or alcohol for a time before starting treatment. Still, 鈥渉epatitis C testing remains out of reach for many because their providers aren鈥檛 aware that their patients can get treated,鈥 said Kimberly Page, an epidemiologist and professor of internal medicine at the University of New Mexico who focuses on hepatitis C.
