Patient Advocacy Groups

Many Autoimmune Disease Patients Struggle With Diagnosis, Costs, Inattentive Care

Despite the prevalence of autoimmune conditions, like the thyroid disease Hashimoto鈥檚, sometimes finding help can prove frustrating as well as expensive. There are often no definitive diagnostic tests, so patients may rack up big bills as they search for confirmation of their condition and for treatment options.

Podcast: KHN鈥檚 鈥榃hat The Health?鈥 Reading The Tea Leaves In Blue Wave鈥檚 Wake

In this episode of KHN鈥檚 鈥淲hat the Health?鈥 Mary Agnes Carey of Kaiser Health News, Margot Sanger-Katz of The New York Times, Alice Ollstein of Politico and Anna Edney of Bloomberg News discuss the impact of House Democratic leadership elections and their impact on health policy; as well as efforts by the Trump administration to address high drug prices and ensure the safety of medical devices. Plus, Julie Rovner interviews KHN鈥檚 Jay Hancock about the latest 鈥淏ill of the Month.鈥

The High Cost Of Hope: When The Parallel Interests Of Pharma And Families Collide

Desperate for help in finding a lifesaving drug for a fatal genetic disease, families banded together to fund early research and then worked with drug companies on clinical trials and marketing. Yet, this small patient advocacy group is stunned by pharma鈥檚 pricing.