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This Thanksgiving, Carve Out Time To Talk About End-Of-Life Wishes

Closeup shot of people holding hands in prayer before having a meal together

The roast turkey and pecan pie may be the same as always, but growing numbers of families plan to add a tradition to their Thanksgiving holiday this week: a frank talk about their wishes for end-of-life care.

Paul Malley, president of Aging with Dignity, the agency behind , a popular living will, says requests for the documents that guide decisions surrounding serious illness and death typically surge starting now.

鈥淲e see a bit of a Thanksgiving rush and a bit of a Christmas rush in December,鈥 said Malley, who notes that 30 million copies of Five Wishes have been distributed since 1998.

Turkey dinner with a side dish of death isn鈥檛 everyone鈥檚 idea of a festive meal. But Malley and other experts in end-of-life talks say the holidays are an ideal time to have hard conversations about final preferences and plans.

鈥淧eople come home for the holidays,鈥 said Ellen Goodman, the longtime columnist and reporter who co-founded , which provides kits to . 鈥淚t鈥檚 one of those times when we鈥檙e together. It鈥檚 something that鈥檚 important to talk about.鈥

While many families will start such discussions for the first time this year, Dr. Patricia Bomba鈥檚 family has .

鈥淎fter the dinner dishes are cleared, the adults in our family stay at the table and talk about what matters most in our lives,鈥 said Bomba, vice president and medical director for geriatrics for Excellus BlueCross BlueShield in New York.

Her family joke is: 鈥淭here鈥檚 no pumpkin pie until you tell me how you want to live until you die,鈥 she added. But the holiday sessions helped guide serious decisions when Bomba鈥檚 mother died, she said.

The conversations typically occur between middle-aged children and their elderly parents or grandparents, but they should include all of the adults in a family, Malley said.

鈥淒on鈥檛 just put your grandparents in the hot seat,鈥 he said. 鈥淚t makes for a better and easier family conversation if everyone is in it together.鈥

The goal is to ensure that people鈥檚 preferences are honored. But the talks also can reduce the guilt and depression many family members feel after a loved one dies.

鈥淵ou can talk about what your values are, who you want to make decisions for you, the care you want, the care you don鈥檛 want,鈥 Goodman said.

Often, though, no one wants to broach the subject, even when they think they should. A 2013 Conversation Project survey found that while 90 percent of people said it鈥檚 important to have end-of-life discussions with their loved ones, fewer than 30 percent had done so.

Nationwide, about a third of adults in the U.S. have completed written advance directives that spell out wishes for care or designate the person they鈥檇 like to carry them out, according to a .

that advance care planning, including the use of written documents, can increase the chances that people鈥檚 end-of-life wishes will be followed.

But conversations held over time are key, said Jeannette Koijane, executive director of the Hawaii Hospice and Palliative Care Organization in Honolulu.

鈥淛ust checking the boxes is not what makes the difference. It鈥檚 the conversation that makes the difference,鈥 she said.

Having those conversations in person is important, too, said Malley, who plans to help his parents, who are in their 70s, update their documents over the holiday.

鈥淚t鈥檚 a natural time to discuss which one of us boys do you want to be your health care agent?鈥 said Malley, the youngest of three brothers. 鈥淢y parents are teaching us about advance-care planning by doing this together as a family.鈥

Still, starting such a conversation can be difficult, Goodman said.

鈥淧eople think if I bring this up with my elderly parents, they鈥檙e going to think I want them dead. Or there鈥檚 something wrong,鈥 she said.

But if family members can explain that the goal is to understand what matters most to the person at the end of life, the conversation changes. The agency has put together a to show how to break the ice.

鈥淲hen you say how important it is to you, it鈥檚 truly a gift,鈥 Goodman said.

She sees a shift in the culture surrounding end-of-life wishes, even in the five years since The Conversation Project started.

Back then, the specter of 鈥渄eath panels鈥 nearly derailed Obamacare. Today, end-of-life conversations are being paid for by Medicare and books like Atul Gawande鈥檚 鈥淏eing Mortal鈥 have topped the best-seller list.

鈥淚鈥檓 convinced we鈥檙e at a tipping point,鈥 Goodman said. 鈥淚t鈥檚 so important to get it right. When you get it wrong, you get something big wrong.鈥

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