Millions of Californians are newly eligible for a health care benefit that could determine the treatment they receive in their final days 鈥斅燼nd most don鈥檛 know it.
Medi-Cal, which covers more than 13 million Californians, and Medicare, California enrollees, now pay for 鈥渁dvance care planning鈥 discussions with doctors.
Advance care planning isn鈥檛 about long-term care options, such as nursing homes or assisted living.
It鈥檚 about 鈥測our wishes for your care if you are not able to speak for yourself,鈥 said Helen McNeal, executive director of the .
鈥淚f you鈥檙e incapacitated, if you need someone to speak for you, who do you want to speak for you? And what would be your medical wishes?鈥 she said.
If, for instance, you have a stroke that leaves you unconscious and unable to communicate, with little hope for improvement, would you want to be kept alive with a feeding tube and or ventilator?
鈥淭hese decisions may have consequences for the quality of life you have for the rest of your life. They may also have consequences for whether you live or die,鈥 McNeal said.
In other words, they鈥檙e important. But many doctors and patients don鈥檛 yet realize that talking about these decisions 鈥斅燼nd possibly putting them into writing 鈥斅爄s a covered benefit.
Starting in October, Medi-Cal 鈥斅爐he state鈥檚 version of the federal Medicaid program for low-income residents 鈥斅燽egan covering advance care planning discussions between doctors (or other qualified providers) and patients (or a family member), said Tony Cava, spokesman for the state Department of Health Care Services, which administers Medi-Cal.
Any Medi-Cal recipient can use the coverage regardless of age, he said. Doctors can bill for the conversation twice a year per patient 鈥斅爌lus an additional 30 minutes for one of the conversations 鈥斅燽efore they have to seek authorization for more coverage.
Medicare, the federal health insurance program for people 65 and older, and for people younger than 65 who have certain disabilities, started covering the discussions on Jan. 1. the number of discussions per patient each year.
Some private insurance plans cover these discussions and some don鈥檛, McNeal said. Check with your plan.
Both Medicare and Medi-Cal will cover the conversations even if patients don鈥檛 end up completing an 鈥溾 as a result. That鈥檚 a document that formalizes your wishes, which should be shared with your family and doctor.
McNeal believes that anyone over 18 should have this discussion and complete an advance directive.
But don鈥檛 expect your doctor to initiate the conversation.
鈥淢any physicians may not be very comfortable having this conversation,鈥 said Dr. Richard Thorp, president of the Paradise Medical Group near Chico, and past president of the , which represents the state鈥檚 doctors.
, released in April, found that nearly half of them feel unsure some or much of the time about what to say when discussing end-of-life care with patients. (The poll was commissioned in part by the California Health Care Foundation. California Healthline is an editorially independent publication of the California Health Care Foundation.)
Thorp鈥檚 patients are mostly older, so he incorporates advance care planning into their annual . Medicare reimburses him about $86 for the initial 30-minute discussion, and about $75 for each additional 30 minutes, he said.
鈥淭here鈥檚 an art to having the discussion,鈥 he said. 鈥淭here鈥檚 an art to recognizing when people are uncomfortable.鈥
McNeal鈥檚 institute, in partnership with the , offers online training for doctors about advance care planning. One course specifically focuses on .
Because many doctors don鈥檛 know about this benefit 鈥斅爋r may feel uncomfortable broaching the topic 鈥斅爉ost people should start by with family and loved ones, suggested Mark Beach, an AARP spokesman based in Sacramento.
After your discussion, write down your wishes, he said.
鈥淚t鈥檚 difficult to discuss, but when you鈥檝e done it, it鈥檚 a comfort,鈥 Beach said. 鈥淣ot only will your wishes be followed, but your loved ones will know what to do.鈥
A variety of forms and templates are available to consumers. Thorp sometimes uses what鈥檚 called a 鈥溾 form, which is that must be completed and signed by a health care professional.
It is typically for seriously ill or frail patients, McNeal said, whereas an advance care directive is a legal document for people of any age or condition.
McNeal recommends the 鈥溾 form, which can be personalized and is available online for $5 at . Other options for advance directives can be found at or . (A lawyer can help you prepare an advance directive, but you usually don鈥檛 need an attorney to get it done.)
After you have filled out your advance care directive, take it to your doctor and tell her you want to talk with her about it, McNeal said. Don鈥檛 forget to give your doctor a copy.
鈥淭he role of the physician is really to provide information, not to persuade one way or the other,鈥 Beach said.
Thorp explains to his patients what it means to be intubated, fed artificially and kept on life-support.
Most are open to the discussion, he said, and their responses are mixed. Some older or sicker patients tell him they don鈥檛 want any extraordinary measures if they鈥檙e incapacitated. Others, who are younger and healthier, say they would probably want medical intervention if they might have a chance to thrive afterward.
鈥淢ost people don鈥檛 want to be kept on life-support indefinitely. They really don鈥檛 want that,鈥 Thorp said. 鈥淭hey want to live a productive life.鈥
This story was produced by , which publishes , a service of the .