KHN Video: Warrior Luke
Luke Whitbeck鈥檚 life was saved by a rare disease drug, but it costs $300,000 a year.
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Luke Whitbeck鈥檚 life was saved by a rare disease drug, but it costs $300,000 a year.
With announcements of placements in residencies expected in March, medical education groups and hospitals say they鈥檙e unsure how to proceed.
Despite questions about Lupron鈥檚 lasting side effects and minimal study into its safety, the FDA sped approval of the drug to market. Years later, some young women are still living with the consequences.
Concerns over U.S. Rep. Tom Price鈥檚 answers about stock trades led Senate Democrats to boycott a committee vote that would have moved his nomination to the Senate floor.
A new study, though small, finds extensive damage to commonly used medical scopes that could trap dangerous bacteria. That raises concerns about the potential for more outbreaks.
The device, known as Evzio, administers just enough naloxone to stabilize someone who has overdosed on drugs. But its manufacturer, Kaleo, may be positioning itself to find profits in a dire health care crisis.
The HMO blew two deadlines to supply information required by the state to monitor Medi-Cal managed care plans. Kaiser says it is 鈥渢aking steps鈥 to resolve the problem.
Rep. Tom Price, up for running HHS under President Trump, helped a company that became a top campaign donor, records show.
The Consumer Financial Protection Bureau reports in a new study that 59 percent of people contacted by a debt collector had outstanding medical bills.
Letters sent to Medicare from U.S. Rep. Tom Price, President Trump's pick to run HHS, supported physicians as well as drug or device makers, records show.
Intense, 鈥渉igh touch鈥 care that focuses on housing as well as health care brings down medical costs for the most expensive patients. But it鈥檚 been hard to replicate successful programs.
Donald Trump鈥檚 pick to run HHS has been under fire for trading health care stocks but at least six senators at his confirmation hearings also own such stocks.
Federal officials release names of insurers who ranked poorly in a recent review of their online directories鈥 accuracy.
Orphan drugs for rare diseases have helped or saved hundreds of thousands of patients like 2-year-old Luke Whitbeck, but families and insurers are picking up the astronomical cost.
Drugmakers have brought almost 450 orphan drugs to market and collected rich incentives but nearly a third of those products aren鈥檛 new or were repurposed multiple times, an investigation shows.
Follow the twists and turns of the orphan drug industry over the past three decades.
Check out all the drugs the FDA has approved to treat rare diseases. You can search by brand name, or by disease, and see familiar names that were first sold on the mass market or all the drugs that won FDA approval to treat more than one rare disease.
The former Congressman championed the Orphan Drug Act decades ago but now he fears it鈥檚 being manipulated to make money.
President-elect Donald Trump鈥檚 Cabinet pick Tom Price "assisted" a company and campaign donor who tapped executives with an urgent request to donate.
A high-profile whistleblower attorney representing the physician is seeking class action status.
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